SPINAL CORD SOCIETY - SCI DAY
The Instituto Nacional de Rehabilitación Psicofísica del Sur (INAREPS) http://www.inareps.gov.ar are organizing various activities:
The spinal cord injury association in Cambodia (SCIAC) is working with the support from international funders and local donations for “full and equal participation for people with spinal cord injury within community and society.” They offer outreach services, provision of health care supplies, peer support group training and advocacy to support the rights for people with a spinal cord injury.
2. There is one spinal cord rehabilitation centre in Cambodia. In 2015, Sunnaas Rehabilitation Hospital in Norway and People with Disability Foundation (PwDF) Cambodia, started an exchange program of medical staff between the two countries to improve rehabilitations services for people with spinal cord injuries, increasing survival and quality of life for people with a spinal cord injury. The main tasks are;
working with and training the staff
SCI education
cooperation with stakeholders, NGOs, GOs, and to put focus on and improve referral systems, medical care, rehabilitation and follow up.
On 5th September there will be a local celebration with sport activities with the SCIAC and the rehabilitation centre.
Awareness videos will be distributed on social media.
To view the photo gallery of the event please click hereIn order to improve the Chinese public awareness of the spinal cord injury, CARD-SOSCI warmly respond to ISCoS about the initiative of "spinal cord injury on the anniversary”, and make the following action plans.
In addition, CARD-ISCOS will hold the 28th national academic conference on SCI and the 11th Beijing international rehabilitation forum as opportunities to carry out activities as follows:
Spinal Cord Injury Day Ambassador of China
Ms.Tang Zhanxin, born on Dec. 21st, 1978, studied for Master
Degree of Financial Management in Germany from 2001 to 2004. In 2004, just
one
day before she was leaving for home, she got into a car accident and
acquired
T12 L1 complete SCI.
Since 2008, after she regained confidence and the ability of independent
living,
she began to work in an international company in Beijing. In 2014, she
quitted
her job and founded a NGO named Beijing SCI New Life Center with 3 other
persons
with SCI, which is a community-based rehabilitation platform dedicated to
providing social rehabilitation for persons with SCI. As a woman on
wheelchair, she has gained following major achievement:
The system of care of SCI patients in the Czech Republic consists of multiple phases. Each phase takes place in a different clinical setting. Following surgical intervention by the spine surgery department, the patient is transferred to the spinal cord unit which provides intensive therapeutic and rehabilitation care for 2 to 3 months. The next phase is provided at the rehabilitation center for approximately 3 to 5 months. It is important to note that there are 4 dedicated spinal cord units and 3 separate rehabilitation centers focusing on SCI patients in the Czech Republic.
The Czech Spinal Cord Society networks professionals from across these centers. Its main objective is to promote a close working relationship among them. It participates in implementing a biannual SCI conference and ISNCSCI/SCIM/Walking tests courses, publishes recommended procedures and collects statistical data about SCI in the Czech Republic. It is also an important partner for health insurance companies, the Ministry of Health as well as the Ministry of Labour and Social Affairs.
The international SCI day provides an opportunity to inform the general population about the magnitude and consequences of SCI. Programs regarding preventive measures are therefore highly desirable. Raised awareness of SCI may also improve social acceptance of wheelchair users, enhance employment opportunities, remove barriers, etc. The Czech Spinal Cord Society provides a guide to activities to each different organization involved in this domain on September 5th.
1.General recommendations:
Poster presentation with the SCI Day logo about the activities taking place
on
September 5th.
The announcement of the SCI Day in all local press and digital media.
The presentation of the SCI concerns on national TV and radio.
2.The recommendations to SCI units:
To hold an Open Doors Day for employees of other departments.
An information session for employees of other departments presented by
various
providers of care, such as physicians, nurses, physiotherapists,
occupational
therapists, psychologists, etc. regarding their roles in treating SCI
patients.
For the unit to conduct informational services via pamphlets and media
presentations in the hospital.
3.The recommendations to Rehab centers:
The patients are to have an opportunity for group discussion after their SCI. Eminent individuals with SCI will hold motivational sessions regarding positive approaches following SCI.
4.The recommendations to non-profit organizations:
To hold an Open Doors Day for the general population with the intention of improving awareness of SCI and the challenges following it. The ability to experience various designs of aids such as different sport wheelchairs, handbikes, etc.
5.The recommendations to foundations:
The solicitation of funds to be applied towards supporting wheelchair bound patients to enable them to purchase special devices, the facilitation of functioning in various social situations, etc.
6.The recommendations to organizations dealing with medical equipment:
These organizations should provide support to adhere with the concept of a dedicated SCI Day of September 5th.
in Denmark the consumer organization (RYK) together with both SCI Centers arrange special events including showing the movie ”Best of men”.
Helsinki University hospital (HUH) have designed a short press release with the “Finnish Association of People with Physical Disabilities” (Invalidiliitto) and “The Finnish Association of Spinal Cord Injured” (Akson). This release will be published in HUH intranet and on the web sites of Finnish Associations / Facebook.
On the occasion of International SCI day, Handicap International information network has written a statement in support to this day and highlighted the different concerns that still need to be taken into account to improve the lives of persons with SCI , empower them and ensure equal opportunities to ensure them to be actors of their lives and participate in their communities .
The different links are readable in French and English as to extend this information to the most wide audience worldwide throughout the 60 countries where Handicap International is active .
https://twitter.com/HI_Advocacy
During the AMLAR Congress in San Pedro Sula, Honduras; the organizer committee has been informed about SCI Day and activities related will be carried out, including a message during presentation of Dr Federico Montero on a Plenary Session, entitled “The role of the physiatrist and its influence on policies related to health”.
International Spinal Cord Society (ISCoS) has decided to observe 5th September as Spinal Cord Injury (SCI) Day, with the intention of increasing awareness amongst general public. It is presumed that the awareness would facilitate an inclusive life for persons with disability and ensure success of prevention programs.
05th September, a neutral day without any significance as such, has been decided upon since the weather across the globe is likely to be conducive for outdoor activities and schools as well as colleges are generally open allowing the younger generation to be targeted. On the ‘Spinal Cord Injury Day’, Spinal Cord Society (SCS) along with Association of Spine Surgeons of India (ASSI), Indian Orthopaedic Association (IOA), Indian Association of Physical Medicine and Rehabilitation (IAPMR), Indian Academy of Neurology (IAN), Asian Spinal Cord Network (ASCoN), Indian Spinal Injuries Centre (ISIC) and The Spinal Foundation (TSF) would carry out the different activities in the following Cities:
The play is based on real life stories of patients highlighting aspects of SCI- cause, problems, difficulties of integrating with society. It has been put together by Red Curtain, the oldest English theatre group in Bengal.
At Lady Willingdon Hospital & Day Star School Society, Manali, Himachal Pradesh, India. Our society in association with the Spinal Foundation of India is organizing a walk in the community on September 5th to bring out more awareness about Spinal cord Injuries.
Contact: Mr Reuban Daniel (Mobile 9379741934)
Address:- The Association of People with Disability (APD)
6th
Cross, Hutchins Road, Off.Hennur Main Road, Lingarajapuram,
St.Thomas Town Post, Bangalore- 560084
Contact: Mr Dawinder Singh (Mobile 9814138141)
CIIMS Hospital
88/2, Bajaj Nagar, Nagpur 440010
Contact: Mr Murnmaiy (Mobile 9819812011)
Contact: Ms Nikki (Mobile 9876987044)
Contact: Mr Dilip Patro (Mobile 9177363600)
Contact: Mr Jomi John (Mobile 9495172699)
Research Society of Orthopaedics PGIMS, Rohtak is going to contribute to the noble concept of International Spinal Cord Society (ISCoS) by celebrating “Spinal Cord Injury Day”, on 5th September, 2016 in the Department of Orthopaedics, Pt. B D Sharma PGIMS, Rohtak. We are organizing a public awareness program in our hospital in the form of poster and video presentation. Students and staff of our Orthopaedic Department and College of Physiotherapy are going to participate in this endeavour. This will be followed by guest lectures by eminent spine surgeons Prof. Rajbhadur & Prof. SS Sangwan .
Contact Person: Dr. Roop Singh,
Vice-president,
Research Society of Orthopaedics PGIMS
Department of Orthopaedics,
Email:- drroopsingh@rediffmail.com
In Chennai we at Sri Ramachandra university are doing a rally on the 4th Sept along with a spinal injuries camp and awareness programme at Sri Ramachandra hospital.
Contact: Dr. Karthik Kailash (kkspinedoc@gmail.com)
Participating Organizations in India
Spinal Cord Society (SCS)
Spinal Cord Society (SCS) serves as national coordinating, co-relating and advisory, non profit making body on the study of all the problems concerning the causation and prevention of traumatic and non traumatic lesion of the spine and spinal cord including basic and clinical research, medical and surgical treatment, clinical practice, education, rehabilitation and social reintegration, in close collaboration with other national and international bodies, encouraging maximum available use of resources within the country.
Association of Spine Surgeons of India (ASSI)
The aim of ASSI is to promote scientific spine care, both surgical and non-surgical, in India through the medium of national, regional and local meetings, symposia, CMEs and workshops. The Motto was “if we are doing it, let us do it better”. ASSI promoted any spine related scientific activity, anywhere in India. ASSI also help formation of local spine bodies. In the last 25 years of existence, primary focus of ASSI has been “Patient's welfare first”! It puts the patient above anything else and practices science. It is an organization of scientists with humane minds.
Indian Orthopaedic Association (IOA)
The IOA is one of the largest professional organizations which has more than 10000 active life members. It is a vibrant organization which focuses on academics, research and social networking. From the time of its formation in 1955, in these 60 years this organization has evolved into a strong professional body with many sub-committees and regional committees.
Indian Association of Physical Medicine and Rehabilitation (IAPMR)
IAPMR, Indian Association of Physical Medicine and Rehabilitation, is a scientific body of the Medical Doctors (Physiatrists), working in the speciality of PMR, Physical Medicine and Rehabilitation. It is a registered society promoting education and research in PMR. It also looks into legislative affairs for persons with disability.
Indian Academy of Neurology (IAN)
IAN is a platform to facilitate exchange of information and enhance networking activities among neurologists. The long term mission is to familiarize all members of academy with the concepts, themes and good practices of advocacy for neurology so as to improve the status of neurology education and services all over the country. Neurology services are extended to far corner of the country through health camps and life-line train. Public awareness day for Stroke, Epilepsy and Multiple Sclerosis is organized regularly every year.
Asian Spinal Cord Network (ASCoN)
Asian Spinal Cord Network (ASCoN) is an affiliated society of ISCOS (International Spinal Cord Society). It was initiated in 2001 following a meeting of regional experts during the International Conference on Spinal Cord Lesion Management hosted by the Centre for the Rehabilitation of the Paralysed (CRP), Bangladesh. ASCoN currently has 75 member organizations in 18 countries in Asia.
Indian Spinal Injuries Centre (ISIC)
ISIC is the most advanced Spine, Orthopedic and Neuromuscular Surgical centre in India with the latest state of the art diagnostics and surgical equipment and a highly qualified team of specialists recognized internationally who have been trained in leading institutes of India and abroad. ISIC strive to bring awareness in the field of disability and lobby with policy makers to introduce suitable legislation for prevention of disability and enforcement of the equal opportunity bill.
The Spinal Foundation (TSF)
The Spinal Foundation is an India Self-Help Group for persons with spinal cord injury. As an umbrella organisation, The Spinal Foundation seeks to combine efforts, be more effective, improve reach, have unified voice for advocacy, share best-practices and address the daunting challenges faced by persons with SCI, especially those who are also economically challenged, and living in rural areas. The Spinal Foundation aspires to improve quality of rehabilitation, guide persons with spinal cord injury to a healthy life of dignity and improve advocacy. Living Well with SCI is the motto of The Spinal Foundation.
Our society is planning several activities.
We are organizing a reunion for chronic SCI patients. We also invite several organizations who organize sporting events for people with SCI.
Furthermore we are putting posters in our several institutes to ask attention for SCI patients.
Overall we hope to make it a positive day and create more awareness for SCI.
At New Zealand Spinal Trust head office in Christchurch NZ we are taking the opportunity to give back to our community, start SCI awareness young and demonstrate independent, meaningful living for people with an SCI . To that end we are partnering with a local supermarket and low decile school to provide a lunch to needy kids. At the same time we will be seeking to dispel myths, break the ice, and display to kids that folks in wheelchairs are just ordinary people doing life. We will line up 'Subway Sandwiches' style and make sandwiches for the kids, getting them up and close to folk who live life in wheelchairs. There will be a short talk about the importance of looking after your spine for your whole life followed by some fun in the school yard in Wheelchair Rugby Wheelchairs.
The Norwegian Spinal Cord Injury Registry (NorSCIR), The Norwegian Spinal Cord Injuries Association (LARS) and the three SCI units in Norway have the tradition to work close together to improve:
Quality of SCI treatment
Prevention programs
Research
Education
Focus on an inclusive life for persons with spinal cord injury
The Norwegian Spinal Cord Injury Registry (NorSCIR), The Norwegian Spinal Cord Injuries Association (LARS) and the three SCI units in Norway have in cooperation written an article to increase awareness about SCI. This article will be published the 5th of September in Today's Medicine, the largest independent news channel for health care. Today`s Medicine is an important forum for discussion among health care professionals and politicians and other decision makers in health care.
There will be organized a celebration at each SCI unit on SCI day.
The Norwegian Spinal Cord Injuries Association (LARS) will publish a press release to inform the general public about several ongoing projects for a more inclusive life for persons with a disability.
“Hunting for all” is a project focusing on giving disabled people access to hunting and fishing experiences. The “Cycling for all” project is a collaboration between LARS and the Norwegian Cycling Federation and the Norwegian Federation of Sports. The main focus in this collaboration is handbike cycling. In addition LARS arranges several activities, meetings and conferences during the year, with typical SCI topics.
A scientific session especially dedicated to commemorating the International Spinal Cord Injury (SCI) Day has been schedule on the 7th of September, 2017, during the Conference organized by The Romanian Spinal Cord Society (RoSCoS - affiliated to the ISCoS), Romanian Society of Physical and Rehabilitation Medicine & Balneoclimathology (RSPRMB) and the Romanian Association of Balneology (RAB). The conference is being held from the 3rd - 5th of September, 2017. The theme of the conference is 'Comprehensive approaches in pain issues and in spinal cord pathology in the context of the International day of Spinal Cord Injury (SCI Day)'. The details regarding this Conference, reading its Brochure, which is available - including in PDF format (http://rosnera.org/wp-content/uploads/2017/07/SCIDay-english.pdf) - on the RoSNeRa/ RoSCoS official web site [http://rosnera.org/ the "RoSCoS" button the "Evenimente/ Activitate editoriala" subbutton: (http://rosnera.org/roscos/)].
We have expanded our celebration of SCI Day to several activities. I'd like to ellaborate so you have materials for this (wonderful) website! So I'll include the full text to update our part :) "From Madrid, Spain, the Spinal Cord Injured Foundation" (Fundación del Lesionado Medular) is organizing several activities to collaborate and raise awareness about spinal cord injury. - The Occupational Therapy department, along with the rest of FLM users and workers, have organized a FlashMob with a popular spanish song to try and cheer up life: forget about the sad stuff... just laugh and live again!. - The Physiotherapy department have programmed the PhysiOlympics: rehabilitation made competitive in order to increase awareness about the importance of rehabilitation for people with SCI. - The Rehabilitation deparment will hold a special Summer Kinect/Wii Tournament!. Thanks to our friends from The Ablegamers, we are able to offer this special edition of our most popular tournament. - Also, the SocioCultural Animation department will hold a special Summer Inclusive Darts tournament. After our triumph in the local general league, and the national league... let's compete just to prove the world SCI doesn't mean we cannot win! - The Occupational Workshops, specially the Radio Workshop, will program on their radio programming several contents regarding the importance of medical attention and testimonials about living successfully with SCI. - The Rehabilitation department will also create different posters for the different treatments offered in the area, to raise awareness between the general public and our own users about the importance of certain types of exercises to increase mobility and improve the general condition of people with SCI." Thank you very much for your support, and for taking this initiative. We find it really interesting and fully support your work.
Best regards,
Luis Jaén
A ‘Drop Kerb’ campaign is planned in Milton Keynes.
The local artists shall be decorating the surrounding kerbs of Spinal Injuries Association office at Milton Keynes to highlight SCI
SCI UK has also added a news item to their website sciuk.org.uk.
September 5th activities of groups of people with SCI at the community.
Health and Social authorities invited but also open to the community
Messages of awareness for the community will be delivered about what it is and the implications of a SCI as well as the rehabilitation process
A quad rugby inclusive game and general population will be invited to use a wheelchair to go around the communities
All activities were proposed by the people with SCI