SPINAL CORD SOCIETY - SCI DAY

Bangladesh

Centre for the Rehabilitation of the Paralysed (CRP) observed the 3rd International Spinal Cord Injury Day on 5th September 2018 successfully with the slogan "Stop Spinal Cord Injury" along with other countries of the world. The day started with a rally at 8:00 am where more than 150 people with spinal cord injury joined. Other events throughout the day include:

  • Human chain to raise awareness
  • Inclusive Cultural Programme
  • Discussion session
  • Experience sharing by persons with SCI
  • Distribution of Assistive devices among SCI patients
  • Friendly Wheel Chair Basketball match

Mr. Hedayetullah Al Mamoon, Chairman, Bangladesh NGO Foundation (BNF) was present as the chief guest. Dr Fazlul Huq, Senior Consultant, Orthopaedic and Spine Surgeon, Square Hospital Bangladesh; Dr. Syeed Uddin Helal, Head of CRP's Medical Services Wing; Professor Dr. Md. Omar Ali Sarkar, Principal, BHPI, and Anwar Hossain, General Secretary, Spinal Cord Injuries Development Association (SCIDAB) were present as Special Guests. The programme was chaired by Md. Shafiq-ul Islam, Executive Director, CRP.

The full programme was live telecasted on CRP's official facebook page with the following link https://www.facebook.com/CRP.org/

France

The Day shall be commemorated with events, concerts and sport demonstrations all the daylong on Aeptember 5th at Center Jacques Calvé - Hopale Foundation, Berck and Nantes, France

Germany

3rd World SCI Day (5th September) will be commemorated with a common central event of DMGP (www.dmgp.de) , FGQ (www.fgq.de) and FGQZUlm (www.fgqzulm.de) in the capital city Berlin in the German Reichstag including its famous cupola and reception by the parliamentary secretary of state of the Ministry of Health organized by the President of DMGP Yorck B. Kalke for 50 members of those 3 German speaking institutions including 25 SCI wheelchair drivers. In the afternoon there will be continuation of this event with official photo appointment at the Brandenburg Gate and later at the German medicinal technology company Otto Bock a peer meeting with talks and discussions mainly regarding the theme "Stop Spinal Cord Injury".

Greece

HeSCoS and the Hellenic Society of Physical & Rehabilitation Medicine are planning to celebrate the 5th of September World SCI Day 2018 in North Greece (Thessaloniki & Amyntaio of Florina) and West Greece (University Hospital of Ioannina and Municipality of Ioannina). Actions before, during and after the 5th of September, will take place in the following cities of Greece: Athens, Thessaloniki, Patras, Ioannina and Amyntaio of Florina. The Macedonia & Thrace Section of the Panhellenic Association of Paraplegics is actively participating in the above events.

Honduras

Asociación Hondureña de Lesionados Medulares realizará el 5 de setiembre..... Juan Manuel Guzmán

Romania

A TV show "Closer to you" was broadcasted on July 28th which focused on the prevention of road accidents, including also advice to young people to avoid diving accidents. Its main message was "The fracture of the spine might be a fracture of the destiny"

The video-clip is a small interview, and is in Romanian.

The text below:

"The Chinese medical tradition (stretched over a period of 5,000 years) puts social medicine and prophylaxis at the center of its goals. A doctor was appreciated to the extent that he could prevent diseases and their epidemic spread.

In this regard, the articles posted on Facebook fall within the main goals of prophylaxis, focusing on young people: prevention of central nervous system injuries and serious paralysis (secondary to traumatic brain injury - after road accidents and/ or spinal cord injury - after imprudent diving in turbid or unverified waters), or the danger of deliberately "underestimating" drugs ("legal" ones, cannabis, etc.).

Educational-prophylactic approaches begin to bear fruit. Following intense media coverage (Facebook and the National Campaign on Prophylactic Education broadcasted at national TV stations), the number of young patients who have suffered severe SCIs has diminished during the two consecutive years 2016 - 2017. The incidence of tetraplegia by diving was reduced by 26.8% in 2016 and by 39% in 2017 (compared with data recorded annually in 2011-2015)."

South Africa

Muelmed Rehabilitation Centre, Pretoria

The spinal cord injuries awareness day is scheduled for the 5th of September 2018. The theme for this year is " stop spinal cord injuries". As such, this awareness will be at Hoerskool Staatspresident C.R Swart.

Thabang, who is a current peer-supporter for spinal cord injured patients has been chosen to speak at this event to bring awareness on how learners can avoid getting spinal cord related injuries. He will also bring awareness regarding the existing peer-support programme that learners can tell their relatives and/or friends about.

Netcare Rehabilitation Hospital

  • Front of hospital display of posters in line with theme on PREVENTION
  • These posters have already gone up in all strategic areas of our hospital
  • An email banner will run on the day
  • On Wednesday we are running a workshop 11-1pm. We have invited nurses and unit managers from all Netcare Hospitals as well as from other hospital groups, funders and past and present patients and their families. Although the focus is STOP SPINAL CORD INJURY our speakers are also going to touch on aspects of the rehabilitation journey, adjustment to the injury, the return to work process, advice and motivation by sharing their own experiences. Our speaker line-up is great in that it covers experiences from a recently rehabbed person, a female and a person who has surpassed all barriers of his disability over a period of time
  • Everyone will be wearing these stickers on the day

Life Rehabilitation based at Life Entabeni Hospital

The unit is planning to host an informative session about spinal cord injury and two guest speakers have been invited to share their testimonials. All attendees will be invited to attend a special tea afterwards.

The unit is planning to host a picnic for all patients who have suffered a spinal injury.

Theme of the planned event: STEP INTO MY WHEELS

The unit is hoping to partner with external stakeholders who are also passionate about employing persons with disabilities. The idea is to ask the public to spend a few minutes in a wheelchair (step into my wheels) and thereby creating awareness about how persons lives may change once they have suffered a spinal injury and subsequently became dependant on using a wheelchair.

ASCI unit at Groote Schuur Hospital

The Acute Spinal Injury Unit at Groote Schuur Hospital, together with members of Qawc, the Maties Wheelchair Rugby team and ChangeAbility- a peer counselling group will have an awareness program. We will have two tables manned by spinal cord injured individuals who will be handing out brochures on prevention methods. We have Buckle Up stickers, Don't Dive brochures and will display the QASA Buckle Up banner as we did last year.

It will happen in the New Main Building, E-Floor in Hospital Street from 10am to 13h00. The programme will consist of an information session and awareness drive with posters, photos and videos of Spinal Cord Injury prevention methods and a presentation called Wheelchair Rugby, the ultimate rehab! Some of the past patients, most whom play wheelchair rugby and are Qawc members will be in attendance and will visit some of the patients in the spinal ward.

The Physiotherapy Department have their own "Back Week" awareness program running from Monday 3rd September to Thursday and we expect an increase in visitors to the exhibition area.

URUGUAY

The Maldonado Rehabilitation Center, CEREMA, a community awareness activity is being carried out in the central square of the city of Madonado...... It will be an open activity, with the voluntary participation of people with spinal cord injury.

Turkey

Turkish Society of Spinal Cord Diseases

International Spinal Cord Injury Day September 5, 2018

Time Program
09:30am-10:00am Welcome, coffee-tea
10:00am-10:20am Opening
Dr. Müfit AKYÜZ
President of Turkish Society of Spinal Cord Diseases)
Yildirim YILMAZOGLU:
President of International Spinal Cord Paralytics Society
10:20am10:45am Yildirim YILMAZOGLU:
President of International Spinal Cord Paralytics Society
Living with Spinal Cord Injury
10:45am-11:05am Prof. Dr. Gamze Ekici ÇAGLAR
Hacettepe University - Faculty of Health Science, Occupational Therapy Department
Technical Assistance for Increasing the Employability of People with Disabilities
11:05am-11:30am Assoc. Prof. Engin KOYUNCU
Ankara Physical Therapy and Rehabilitation Training and Research Hospital
Neurogenic Bladder Problems Accompanying Spinal Cord Injury
11:30am-11:45am Discussion
11:45am-12:15pm Visit of Glass Art Products Exhibition

Venue: GOP Taksim Training Hospital, Istanbul, Turkey

  • Opening Ceremony
  • The Meaning of "The World SCI Day " , how to prevent future injuries and rehabilitation facilities for SCI in Turkey: Prof Belgin Erhan,MD
  • Awareness and treatment of pressure sores after SCI: Selahattin Yaman, MD (Plastic and reconstructive surgeon)
  • 3 lectures from patients who sustained SCI and how they survive with their new situation (They made it, why not you!)
  • Live music performance

In order to increase the awareness of SCI amongst authorities and general population invitation has been forwarded to health and local authorities, press, patients and caregivers.